ABOUT XLH DAY:
XLH Day is The XLH Network’s signature annual gathering, bringing together individuals and families affected by X-linked hypophosphatemia for a weekend of education, connection, support, and community.
This year’s XLH Day will take place in Indianapolis, Indiana, with a lighter schedule designed to give attendees more time to learn, connect, and simply enjoy being together. The weekend will begin on Friday afternoon and conclude around noon on Sunday. Highlights will include educational sessions with medical experts, opportunities to ask questions and learn about current issues in XLH care, time to connect with others who understand life with XLH, and special programming for both new and returning attendees. Registration also includes a fun Friday evening trip to the Indianapolis Zoo, including dinner in the Dolphin Pavilion.
Whether you are newly diagnosed, a longtime member of the community, a caregiver, a parent, or an adult living with XLH, XLH Day offers a welcoming space to learn, share, and feel less alone.
More schedule details and session information will be added as they are finalized, so please check back often for updates.
Questions about sponsoring?
If you would like to be a sponsor and be featured at the event, please contact us.
General questions?
Registration, scholarships, schedule, etc.
Questions about volunteering?
Be part of the team that makes XLH Day happen!
XLH Day 2026 is sponsored in part by Kyowa Kirin
