What to expect in 2026:

We’ve been listening to your feedback and survey responses. This year’s program reflects what we heard: a lighter schedule, more breathing room, and more time built in for networking, conversation, and connection. Please note that this is not a complete schedule. Additional details and sessions will continue to be added, so be sure to check back often for updates!

• Trip to the Indianapolis Zoo 
• Dinner at the Dolphin Pavilion
• Keynote Speech: Thriving with a Rare Disease
• Basic "XLH 101"
• Mental Health Management
• Hearing and XLH
• Advocating for Yourself and Others
• Women and XLH
• "Things We Don't Talk About"
• Managing XLH: Tips and Tricks For Daily Life
• Medical considerations for Adults, Peds, and Aging Adults
• Dental Issues/Treatment
• Orthopedic Challenges/Treatments
• Latest in XLH Research
• Introducing the XLH Community Guidebook