Come and be part of an enriching and empowering occasion at the annual NephCure Patient Summit and Youth Summit. This gathering is tailored for individuals, families, caregivers, advocates, and healthcare allies touched by rare, protein-spilling kidney diseases.

Our aim is to offer education, solidarity, and optimism to those navigating the challenges of rare kidney disease (RKD). Join us in forging connections, acquiring knowledge, and being inspired. Together, let’s create lasting memories and foster hope in this historical setting.

At this event you will hear from leading experts, researchers, and individuals who have dedicated their careers or are personally affected by RKD, learn from NephCure specialists who are at the forefront of RKD innovation and working to improve the lives of RKD patients, gain valuable insights into managing the challenges of living with RKD such as diet and nutrition, mental health, and more. You will also connect with others who understand your journey and build a support system, learn how to be a strong advocate for yourself and the RKD community, the youth summit offers a safe space for young kidney warriors and their siblings to connect, learn, and have fun.

EVENT DETAILS

WHEN
Thursday, June 25 - Saturday, June 27, 2026

WHERE

Hyatt Regency New Orleans

601 Loyola Avenue
New Orleans, LA 70113


EVENT HIGHLIGHTS

  • Inspiring Speakers: Hear from leading experts, researchers, and individuals who have dedicated their careers or are personally affected by RKD.
  • Disease Education: Learn from NephCure specialists who are at the forefront of RKD innovation and working to improve the lives of RKD patients.
  • Interactive Workshops: Gain valuable insights into managing the challenges of living with RKD such as diet and nutrition, mental health, and more.
  • Community Networking: Connect with others who understand your journey and build a support system.
  • Advocacy Opportunities: Learn how to be a strong advocate for yourself and the RKD community.
  • Youth Empowerment: The Youth Summit offers a safe space for young kidney warriors and their siblings to connect, learn, and have fun.

Meet us in New Orleans!

NephCure Travel Assistance Program

NephCure’s NephCure Travel Assistance Program empowers rare kidney disease (RKD) patients to attend the Patient Summit by providing financial support for travel and accommodation. Thanks to NephCure’s generous partnerships, this program ensures that patients can connect, learn, and advocate without the burden of additional costs, fostering a more inclusive and supportive community.

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NephCure Mission: NephCure’s mission is to empower people with rare, protein-spilling kidney disease to take charge of their health, while leading the revolution in research, new treatments, and care.