Approximate schedule:
1:30 PM – Open House Begins
1:30 PM - 2:00 PM: Arrive, enjoy some light refreshments, and connect with fellow community members and PKD organizations.
2:00 PM - 2:15 PM: Introduction
2:15 - 3:00 PM: Breakout group session #1
3:00 - 3:15 PM: Food and beverage intermission
3:15 - 4:00 PM: Breakout group session #2
4:00 PM - 4:30 PM: Continue the conversations and build new friendships.
4:30 PM – Open House Ends
Breakout Groups by Topic:
Advanced CKD: A Clear Map for the Road Ahead
Comunidad de PKD: Conexión y Apoyo en Español*
The Family Conversation: Talking to Your Kids About PKD
The Transplant Roadmap: From "What If?" to "What's Next?"
Beyond Today: A Front-Row Seat to the Future of PKD Treatment
Building a PKD-Free Family Legacy
Decode Your DNA: What Your Genes Mean for Your Future
Next-Level Nutrition: Advanced Strategies for the PKD Plate
The Tolvaptan Club: Real-World Hacks for a Demanding Drug
Beyond the Kidneys: A Proactive Plan for Your Total Health
The Emotional Weight: A Safe Space to Unload and Recharge
Mastering the Pressure: Advanced Strategies for Blood Pressure Control
Mind & Body: Practical Relaxation and Meditation Techniques
The Double Transplant: Navigating Combined Kidney-Liver Transplants
Front Lines of Science: Conversations with People with PKD Actively Participating in Research Trials
*breakout meeting is held in Spanish
Frequently Asked Questions
Can I bring a guest? Yes, you can bring a guest. Please email Susan at sua9031@nyp.org to register your guests and provide names. You will also need to add your guests on the registration page.
Will there be refreshments? Kidney-friendly snacks will be provided along with coffee, water and tea. There will be time to mingle before and after breakout sessions to enjoy refreshments and meet others.
Does the Griffis Club have a dress code? The Griffis club does not have a dress code, please wear comfortable clothing.
Who can I contact for more questions? Please contact Susan at sua9031@nyp.org
Is there parking on-site? Parking is available 24 hours a day at nearby facilities at the following parking garages:
Greenberg
525 E. 68th Street
(between York Ave. & East River)
Tel: (212) 746-2015
Helmsley
507 E. 70th Street
(between York Ave.& East River)
Tel: (212) 746-1974
Payson
426 E. 71st Street
(between First Ave. & York Ave.)
Tel: (212) 746-1977
Phipps House
1285 York Avenue
(between E. 68th St. & E. 69th St.)
Tel: (212) 746-1979