We invite parents and families of children with Li Fraumeni Syndrome to join us for an informative and supportive event hosted by Children's National Hospital.

This event will feature expert speakers, engaging discussions and valuable resources to help navigate the journey of raising a child with Li Fraumeni Syndrome.

Through expert presentations, interactive discussions, and small-group breakout sessions, families will have the opportunity to learn, ask questions, and connect with others who share similar experiences. The day will also highlight available resources, supportive services, and practical tools to help families navigate care, surveillance, and everyday life with Li-Fraumeni Syndrome.

Our goal is to create a welcoming, supportive space where families feel informed, empowered, and connected.

Please note that adults and children are invited to attend this invite.

What to Expect:

  •  Presentations from Children’s National physicians, researchers, and care team members.
  •  Updates on current research, clinical care, and future directions.
  •  Breakout sessions for smaller group conversations and peer connection.
  •  Opportunities to ask questions and engage directly with experts.

Why Attend:

  •  Learn from experts dedicated to Li-Fraumeni Syndrome care and research.
  •  Gain practical knowledge and resources to support your child and family.
  •  Connect with other families in a supportive, understanding environment.
  •  Feel empowered with information, community, and hope for the future.
     

Registration is required to attend.  

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