2020 Noonan Syndrome Foundation Family Conference

The Noonan Syndrome Foundation Family Conference is a unique learning opportunity for families and professionals to connect. The program offers keynote speakers who are experts in their fields, workshops tailored to connect families with others of similar experiences along with individual consultations with Noonan Syndrome medical experts. 

****The ​Noonan ​Syndrome ​Foundation ​(NSF) ​will ​be ​taking ​pictures ​and ​videos ​throughout ​the ​conference. ​Your ​participation ​in ​the ​6th ​Noonan ​Syndrome ​Conference ​gives ​us ​permission ​to ​use ​the ​photos ​and ​videos ​for ​NSF ​use. ​There ​will ​be ​absolutely ​no ​names ​used ​in ​association ​with ​a ​photograph ​or ​video. ​If ​you ​do ​not ​want ​the ​foundation ​to ​use ​your ​photo ​or ​video, ​please ​send ​a ​written ​request ​to ​the ​Noonan ​Syndrome ​Foundation, ​222 ​Main ​Street ​Ste ​144 ​Farmington, ​CT ​06032 ​prior ​to ​the ​start ​of ​the ​conference.****

Frequently ​Asked ​Questions:

When ​is ​the ​last ​day ​register? ​

You ​are ​welcome ​to ​register ​up ​until July 10, ​2020 ​but ​please ​make ​your ​hotel ​reservations ​before ​July 10, ​2020. 

How ​much ​does ​it ​cost ​to ​attend ​the ​conference?

This year we will be offering early bird registration to kick off Noonan Syndrome Awareness month. Rates will raise February 29, 2020, and again April 15, 2020. After April 15, 2020 rates will be the standard rate. 

Adult ​Registration ​(Ages ​13+): ​

Early Bird Registration $150 per person if registered by 2/29/2020

March 1-April 15- $195 per person

April 16-July 1- $225.00 ​per ​person

  Adult ​registration ​includes ​one ​family ​social ​ticket, ​two ​breakfasts, ​two ​lunches, ​ banquet ​dinner, ​and ​the ​conference ​workshops

Child ​Registration ​(Ages ​5-12): ​

Early Bird Registration $90 per child if registered by 2/29/2020

March 1-April 15-$120 per child

April 16-July 1- $150.00 ​per ​child

 Child ​Registration ​includes ​one ​family ​social ​ticket, ​two ​breakfasts, ​two ​lunches, ​ and ​the ​banquet ​dinner.

Children ​4 ​and ​under ​and ​FREE 

 Children 4 and under must also be registered. (This helps us with accurate attendee count as well as to secure funding for future events).

*Children must be registered to attend childcare/camps regardless of age.*

How ​can ​I ​pay?

Credit ​Card ​or ​Personal ​Check ​

Please ​mail ​personal ​check ​to:

Noonan ​Syndrome ​Foundation ​Conference Registration

222 ​Main ​Street ​Ste ​144

Farmington, ​CT ​06032

What travel arrangements are available ​to ​and ​from ​the ​airport?Metrorail – 1 block

Union Station, Amtrak/Greyhound Station – 4 miles

Ronald Reagan National Airport – 8 miles

Dulles International Airport – 30 miles

Baltimore-Washington International Airport – 45 miles

OPTIONS FROM DULLES INTERNATIONAL AIRPORT

Taxi Service: Approximately $50 – $65 

Sedan Service (reservations required): Approximately $105 for up to four passengers) 

Metro: The Silver Line Express schedule can be found here.

OPTIONS FROM REAGAN NATIONAL AIRPORT

Taxi: Approximately $20 – $25

Sedan Service (reservations required): Approximately $65 (up to four passengers) 

Metro: Take the Blue Line metro in the direction of Largo to the Metro Center. Change to the Red Line in the direction of Shady Grove. Take the Red Line to the Woodley Park/Zoo Metro Station. The hotel is located 1 block from the Metro. Once you have exited the Metro via the escalators, go to the right and down the stairs. Go to the left and walk to Calvert Street (1 block). Cross the street and take a right. The hotel will be on your left-hand side. Approximately $1.35 – $2.55 per person.

OPTIONS FROM BALTIMORE/WASHINGTON INTERNATIONAL AIRPORT

Taxi Service: Approximately $75 – $100 (allow 60 minutes of travel time) 

Sedan Service (reservations required): Approximately $125 (up to three passengers) 

Train: Take the free shuttle from the airport to BWI Marshall Rail Station and take either the AMTRAK/MARC train to Union Station. Once at Union Station, take the Metro (Red Line) in the direction of Shady Grove to the Woodley Park/Zoo/Adams Morgan stop. The hotel is located half a block from the Metro. Approximately $6 for MARC and $1.75 for Metro. MARC is available Monday – Friday (limited schedules on holidays). AMTRAK is available daily with service on the weekends (ticket prices vary)

What ​is ​proper ​attire?

Casual, ​comfortable ​attire ​is ​appropriate ​for ​the ​entire ​conference. ​Saturday evening Banquet dinner is more business/dress attire. ​ ​Meeting ​rooms ​can ​get ​chilly, ​so ​layers ​are ​best. ​

Our banquet dinner on Saturday evening will be theamed. It is encouraged to dress up for the event either in costume or in dress attire. 

What ​can ​I ​plan ​for?

Below ​is ​a ​general ​itinerary: ​

Thursday, ​July 23,2010

Adults with NS Lunch

Doctor ​Consults ​(These ​are reserved ​for ​Individuals/families ​that ​have ​never ​had ​a ​consult ​at ​our ​conference ​before. ​They ​are ​on ​a ​first ​come ​first ​serve ​basis... ​Please ​email ​Amanda@teamnoonan.org ​for ​information ​on ​an appointment.) ​ ​

Family ​Social ​and ​Fun

This ​is ​a ​social ​for ​the ​whole ​family ​to ​attend. ​Welcoming ​remarks ​and ​an ​overview ​of ​the ​schedule ​will ​be ​given ​as ​well. ​Your ​registration ​gives ​you ​one ​ticket ​to ​this ​event. ​Extra ​tickets ​are ​available ​for ​purchase ​during ​registration. ​Adult ​(12 ​and ​over) ​tickets ​are ​$40, ​Children ​tickets ​(4-12) ​are ​$25, ​Children ​(0-3) ​are ​free. ​

Guys Night Out $40.00. Event is TBD at this time. 

Friday, ​July ​24, ​2020: ​

Breakfast, ​Morning ​Workshop ​Sessions, ​Group ​Lunch, ​and ​Afternoon ​Workshop ​Sessions

Ladies ​Night ​Out ​(21+) $40.00.  Event is TBD at this time. 

Teen ​and ​Young ​Adult ​Night ​Out ​(13-20) ​$40.00. Event is TBD at this time. 

 ​

Saturday, ​July ​21, ​2020:

Breakfast, ​Morning ​Workshop ​Sessions, ​Group ​Lunch, ​and ​Afternoon ​Workshop ​Session

Banquet ​Dinner

Is Childcare available? 

We will be offering a kids camp for children that are potty trained aged 5-young adult. We are currently working with different venues within the area to host our children for the day. Children under the age of 18 are required to be accompanied by an adult for any off site events. The fees for the camp are $50 per child per day and they must be registered for the conference to be able to attend. 

 This plan is still in the making and we will notify registrants when more information is available. We are unsure if we will be able to have childcare for children not potty trained or children under age 5 at this time. We will update if it becomes available. 

Can ​you ​tell ​me ​more ​about ​the ​banquet ​dinner ​and ​events?

Each ​Conference ​hosts ​a ​celebration ​banquet ​dinner. ​Guests ​are ​also ​welcome ​to ​attend ​but ​you ​must ​pay ​for ​them ​in ​advance. ​ ​Unfortunately, ​we ​cannot ​sell ​tickets ​at ​the ​door. ​ ​ ​The ​cost ​for ​unregistered ​adults ​(13+) ​is ​$50 ​per ​person ​and ​$30 ​per ​unregistered ​child ​ages ​5-12 ​years ​old. ​ ​Children ​ages ​4 ​and ​under ​are ​free. ​You ​will ​be ​able ​to ​purchase ​as ​many ​tickets ​as ​you ​need ​during ​this ​registration ​process and you are able to change your number of tickets until registration closes. There will be a service charge fro edit registrations charged by Cvent.*

Do ​I ​need ​to ​make ​reservations ​at ​the ​hotel ​separately ​and ​what ​is ​the ​price? 

Being ​together ​at ​the ​same ​hotel ​is ​so ​important ​and ​lends ​itself ​to ​the ​very ​purpose ​of ​our ​conference. ​Please ​make ​your ​own ​hotel ​reservations ​directly ​with ​the Omni Shoreham Hotel by ​July 1, ​2020 at 5:00 pm EST ​in ​the ​Noonan ​syndrome ​block ​at ​a ​reduced ​rate ​of ​$179 per ​night ​plus ​tax. ​Once ​the ​rooms ​in ​our ​blocks ​are ​gone ​we ​cannot ​acquire ​more. ​You ​can ​make ​reservations ​by ​calling ​the ​hotel ​directly ​at 1-800-THE-OMNI. Mention the Noonan Syndrome Foundation Family Conference to get our block rate, or you can register for your room at https://www.omnihotels.com/hotels/washington-dc-shoreham/meetings/noonan-syndrome-foundation-family-meeting

The hotel has parking available however parking is managed by an outside company that charges $55/day. Washington DC has a fantastic transit system and we recommend utilizing that instead of renting a car. There is a train station directly across from the hotel. We are working to find cheaper/free parking. Attendees will be notified when/if arrangements are available.