The RYR-1 Foundation International Family Conference 2025

The RYR-1 Foundation International Family Conferences aim to provide valuable opportunities and sessions for newly diagnosed families to learn more about RYR-1-Related Diseases (RYR-1-RD), as well as for returning families to explore the latest developments and new topics not covered in previous Family Conferences. These events bring together the RYR-1-RD community, including healthcare providers and scientists, fostering a collaborative learning environment.

The 2025 Family Conference will feature more panel discussions led by members of the RYR-1-RD community on a variety of topics. By sharing personal experiences, they can support one another and make a significant impact on improving their lives and well-being.

We’re excited to meet and reconnect with the RYR-1-RD community at the 2025 Family Conference!